Population characteristics (Level 1) | Specific questionnaires (Level 2) | ||
---|---|---|---|
Population Characteristics (Level 1) N = 51 | |||
Age mean (SD) | 64.3 (9.0) | Parkinson´s disease N = 42 | |
Gender n (%) | |||
Female | 30 (59) | MDS-UPDRS | |
Male | 14 (27) | Part I Summary score mean (SD) | 3.2 (3.4) |
Missing | 7 (14) | Part II Summary score (med on) mean (SD) | 16.6 (9.5) |
Education n (%) | Part II Summary score (med off) mean (SD) | 17.8 (8.9) | |
High | 13 (25) | Part III Summary score (med on) mean (SD) | 17.4 (9.6) |
Med | 17 (33) | Part III Summary score (med off) mean (SD) | 39.2 (16.3) |
Low | 10 (20) | Part IV Summary score mean (SD) | 6.8 (5.0) |
Other | 1 (2.0) | ||
Missing | 10 (20) | Hoehn and Yahr scale | |
Disorder n (%) | Hoehn and Yahr summary score mean (SD) | 2.2 (0.9) | |
Parkinson | 42 (82) | ||
Dystonia | 5 (9.8) | The Parkinson's Disease Questionnaire (PDQ-39) | |
Tremor | 4 (7.8) | PDQ-39 summary score mean (SD) | 23.9 (13.7) |
Living Situation n (%) | |||
Independent at home | 37 (73) | The questionnaire for impulsive-compulsive disorders (QUIP) | |
Home nursing care | 2 (3.9) | Subscore gambling mean (SD) | 1.1 (2.8) |
Nursing home | 1 (2.0) | Subscore sex mean (SD) | 1.8 (2.3) |
Missing | 11 (22) | Subscore buying mean (SD) | 1.4 (2.5) |
Partnership n (%) | Subscore eating mean (SD) | 2.6 (3.2) | |
Yes | 36 (71) | Subscore punding mean (SD) | 2.4 (2.7) |
No | 5 (9.8) | Subscore hobbyism mean (SD) | 1.7 (2.7) |
Missing | 10 (20) | Subscore medication mean (SD) | 1.9 (2.7) |
EQ-5D-5L | Dystonia N = 5 | ||
EQ-5D-5L Index mean (SD) | 0.73 (0.16) | ||
Burke-Fahn-Marsden Dystonia Rating Scale (BFMDRS) | |||
Beck's Depression Inventory | Movement scale mean (SD) | 11.0 (6.2) | |
Summary score mean (SD) | 10.6 (6.4) | Dystonia disability scale mean (SD) | 4.0 (4.5) |
No depression n (%) | 9 (17.6) | ||
Light depression n (%) | 24 (47.1) | Toronto Western Spasmodic Torticollis Rating Scale (TWSTRS) | |
Moderate depression n (%) | 13 (25.5) | Torticollis severity scale mean (SD) | 15.5 (9.3) |
Severe depression n (%) | 4 (7.8) | Disability scale mean (SD) | 13.6 (3.3) |
Missing n (%) | 1 (2.0) | Pain scale mean (SD) | 3.5 (2.1) |
Total Score mean (SD) | 8.9 (5.3) | ||
Montreal-Cognitive-Assessement (MoCa) | |||
MoCa summary score mean (SD) | 27.1 (3.0) | Tremor N = 4 | |
The Mattis Dementia Rating Scale (MDRS) | Scale for the Assessment and Rating of Ataxia (SARA) | ||
MDRS summary score mean (SD) | 140.0 (5.1) | Gait score mean (SD) | 1.5 (1.3) |
Stance score mean (SD) | 1.0 (1.2) | ||
Sitting score mean (SD) | 0.0 (0.0) | ||
Speech disturbance score mean (SD) | 1.8 (1.3) | ||
Finger chase score mean (SD) | 0.9 (1.0) | ||
Nose-finger test score mean (SD) | 2.5 (0.7) | ||
Fast alternating hand movements mean (SD) | 1.3 (1.2) | ||
Heel-shin slide score mean (SD) | 0.9 (1.0) | ||
Fahn-Tolosa Marin Tremor Rating Scale (FTMTRS) | |||
Part A score mean (SD) | 20.3 (14.4) | ||
Part B score mean (SD) | 22.5 (10.2) | ||
Part C score mean (SD) | 12.5 (6.8) | ||
Total score mean (SD) | 55.3 (28.9) |