Fig. 4

Burden due to NfL and ALSFRS-R. a NfL. Patients with a known NfL value (n = 91) were asked about the burden caused by NfL communication: Q5 “Do you perceive burden caused by the NfL?”. A distinction was made between a “remote information group” with NfL remote notification (n = 67) and a “clinical information group” (n = 24) with NfL clinic notification. b ALSFRS-R. Patients with previous ALSFRS-R remote digital assessment (n = 92) were asked about the burden caused by this procedure: Q5 “Do you perceive the self-assessment of the ALSFRS-R as a burden?”. n Number of patients; NfL Neurofilament Light Chain; ALSFRS-R ALS Functional Rating Scale Revised